Support the ORPHAN Cures Act

Tell your legislator to support the Orphan Cures Act today!

Sign The Letter

I am writing to you to express my strong support for H.R. 5539/S. 3131 the "ORPHAN Cures Act". I urge you to support this critical piece of legislation.

The ORPHAN Cures Act proposes important changes to title XI of the Social Security Act to better support the development and availability of treatments for rare diseases. More than 90% of rare diseases have no FDA approved treatment leaving 27 million patients waiting.

By encouraging the development of more orphan drugs, the ORPHAN Cures Act will bring new hope to patients and their families.

This legislation represents a beacon of hope for countless individuals affected by rare diseases. Your support for the ORPHAN Cures Act will show a commitment to advancing healthcare innovation and improving the lives of those with rare diseases.

Thank you for considering my request. I look forward to your response and to seeing your support for this vital legislation.
I am writing to you to express my strong support for H.R. 5539/S. 3131 the "ORPHAN Cures Act". I urge you to support this critical piece of legislation.

Sincerely

First Name

Last Name

Email Address

Landline Phone

Mobile Phone

Address Line 1

Address Line 2

City

Zip Code

Yes, I want to Volunteer

Password (at least 8 characters)

SHOW

By checking the box, you agree to receive text messages.

Sign the letter today to tell your Congressional representatives to support the ORPHAN Cures Act.

What the Bill Does:

Protects Investment in Rare Disease Research: Ensures continued investment in the development of treatments for rare diseases.
Promotes Innovation: Encourages the creation of new therapies and medical advancements for rare diseases.
Strengthens Incentives: Reinforces and expands incentives for pharmaceutical companies to focus on rare disease research.
Bipartisan and Bicameral Support: The bill has support from both sides of the political aisle and in both houses of Congress, highlighting its broad appeal and importance.

Why It Is Important:

Continues Momentum: Builds on the successes of previous legislation, maintaining and enhancing the focus on rare disease treatment development.
Encourages Financial Commitment: Ensures that pharmaceutical companies remain financially motivated to invest in the high-risk area of rare disease research.
Addresses Unmet Needs: Aims to provide effective treatments for the many rare diseases that currently lack any therapeutic options.
Broad Support: The bipartisan and bicameral backing of the bill indicates strong legislative support, increasing the likelihood of its passage and implementation.